Children at St Margaret’s Primary in Cowie donned orange clothing on Friday (Feb 1) in a show of support of five-year-old Somhairle McMenemy, who battles the serious muscle-wasting condition every day.
It was part of a national day of action by Muscular Dystrophy UK (MDUK) which encourages people to wear something orange or put on sunglasses and make a donation to the charity.
The event was embraced by the school community, with the catering department producing a special ‘go orange day’ menu and the Parent Council providing free fruit to every pupil.
The school also organised a special ‘orange assembly’ which was attended by Somhairle’s parents – Sarah and Gerry, who live just outside Cowie.
Gerry said: “We never knew much about Duchenne Muscular Dystrophy before Somhairle’s diagnosis in August 2017, and that’s understandable as it’s such a rare and cruel condition, with only 2500 people in the UK living with it.
“We are overwhelmed but of course delighted that the whole school community has rallied round and embraced the national ‘Go Orange for a Day’ campaign. Every penny raised supporting ‘Muscle in with Somhairle’ goes to the Duchenne Research Breakthrough Fund.
“We will continue to make sure Somhairle has the best opportunities in life, now and into the future. He has a brilliant medical team supporting him, both in Glasgow and here in Stirling, and he’s now become part of the caring and supportive family here at St Margaret’s.”
Headteacher Paul Nugent said: “Somhairle battles with duchenne muscular dystrophy every day and is an integral part of the St. Margaret’s Primary School family.
“His strength and positivity is an inspiration to us all. Far from being downcast or negative about his condition, Somhairle fights the symptoms head on and continually educates those around him on how his body is changing.
“In support of Somhairle, the entire school community embraced ‘Go Orange for a Day’ in an attempt to raise money for research into muscular dystrophy and we will continue to support this great cause.”
Convener of the Children and Young People Committee, Cllr Susan McGill, said: “Somhairle’s courage in fighting this serious condition has been hugely impressive, and a huge well done to the whole school community for getting involved in this fundraising drive for a really worthy cause.”
Vice Convener of the Children and Young People Committee, Cllr Margaret Brisley said: “Congratulations to all the staff and children at St Margaret’s for supporting such a brave boy in Somhairle and raising such a substantial sum to fund important research into tackling muscular dystrophy.”
A total of £400 was raised from the event and it will be ring fenced for the MDUK Duchenne Research Breakthrough Fund.
Muscular DystrophyUK Regional Development Manager, Dean Widd said: “The support shown for Muscular Dystrophy UK’s family fund, ‘Muscle in with Somhairle’, in this year’s national ‘Go Orange for a Day’ by the staff, children and parents of St Margaret’s RC Primary has been truly inspiring.
“Raising awareness and vital funds, while educating the children about muscular dystrophy, by participating in Go Orange for a Day has proved to be a great success at St Margaret’s RC Primary.
“It would be great to see this enthusiasm and success shown by St Margaret’s RC Primary replicated across other schools in the region in next year’s Go Orange for a Day, being held on Friday 7 February 2020. Well done and thank you to everyone for all your support and help to make a difference.”
For more information please visit https://www.musculardystrophyuk.org/go-orange/
To follow Somhairle’s journey on Facebook, head here www.facebook.com/muscleinwithsomhairle/